Most people may not know about epidermolysis bullosa (EB) — better known as “Butterfly Skin” — but it is hard to forget once you see it. EB is a painful, rare skin disease that affects one in 50,000 ...

Tucker Langford knows there’s going to be a parade on Saturday, but he doesn’t know that it will be for him. This week, he came home from Children’s Mercy for at-home hospice care, battling a rare ...

In 2017, PEOPLE spoke to Brandon Joseph, who is living with the rare disease epidermolysis bullosa. While many patients die during infancy, Joseph is now thriving at 20 Andrea Pett-Joseph Brandon ...

Thousands of people in Kansas City, Mo., showed up to cheer up a child with a rare and incurable disease 3-year-old Tucker Langford suffers from a painful condition known as “butterfly skin,” which ...

KANSAS CITY, Mo. — T-shirts are being made after thousands of people attended a parade for a boy with a rare genetic disorder. A 3-year-old boy, Tucker Langord, was born with a rare genetic disorder ...

KANSAS CITY, Mo. (KCTV) - When 3-year-old Tucker Langford couldn’t go trick-or-treating because of his fragile health, the Kansas City metro came to him instead. Tucker has a rare skin condition ...